Via Universty of Washington...
We are inviting you to complete a short 27-item questionnaire (5-10 minutes) about managing information during cancer care as part of a research study at the University of Washington. This page is to help you weigh the risks and benefits and decide whether you would like to participate.
PURPOSE AND BENEFITS
This study will help us understand the (a) importance and (b) difficulty of the information management you do during cancer care. Your responses will inform our research on how to help patients interact with information during cancer care.
STUDY PROCEDURES
To complete this quetionairre, you must be 18 years old or older and have undergone care for a cancer diagnosis. You will be asked to complete a self-administered questionnaire. We estimate the questionnaire will take 5-10 minutes to complete.
CONFIDENTIALITY
All study information is anonymous. We will not collect your name or any other personal identifiers. The survey software that we use will automatically assign a numeric code to identify your responses. We will ask you to identify your age, gender, ethnicty, level of education, and state/country so we can describe and determine the generalizability of our results.
RISKS TO PARTICIPATION
Since the study is anonymous we do not anticipate any risks to privacy. There may be some risk of stress or anxiety since we will ask you to think about health events. We will ask questions about what kinds of information you interact with and how you have managed that information during cancer care.
Participation in the study is voluntary. Your consent to the above procedures will be implied at the time that you submit your responses. If you have any further questions, please contact Wanda Pratt, at info-study@u.washington.edu. We cannot ensure the confidentiality of information sent via e-mail. Thank you very much for your participation.
"It isn't that they can't see the solution.
It's that they can't see the problem."
~G. K. Chesterton
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